April 19 / Out of the hospital!!

We are out of the hospital, back at the apartment ... and bald tonight.


Here are the last couple days in pictures:

Madelyn received her last dose of Doxorubicion on Monday April 11.  Side effects started to rear their ugly head only on Friday.  This picture is from Saturday after we figured out she had mucusitis in the GI track.  We began to see significant hair loss this day too.  The pain meds got her off the couch Saturday, but she is still not feeling great.  Here she is making pizza's for dinner.

Team Madelyn off to Children's at 7:45am yesterday morning.  Yes, that is a potty chair.  Go hard or go home.  No more diapers, no more diapers, no more diapers...

Not feeling good from the start of the day.  She dressed, brushed her teeth, brushed her hair and ate breakfast while laying in bed.

Coloring while waiting...

  

Waiting room table game.

A very sad and stressful time getting accessed.  She hates the smell of the cleaning swabs.

And Sophia read a book and watched TV during Madelyn's torment.

Here she is waiting for the doctor. This is unusual for her.  When the doctor examined her a little while later she started screaming when he touched her belly.  She had some morphine shortly after and headed down to xray.  After another very vocal episode of pain followed by morphine, the attending decided to keep her overnight for pain management and observation.

Major hair fall out in the afternoon waiting to go to the SCCA floor.

... and more coloring...

 When she woke up this morning she had very little hair left and hair was everywhere.  I asked her if she wanted to buzz it off.  She said yes.

A cut for the long stuff... cool spikes.... then the buzz.

She wanted to keep the hair.  Here she is collecting it in her bag.

I know she looks sad in this picture, but she is just concentrating.  She has been super absorbed in her coloring.  This hospital visit she only requested TV once and only for 30 minutes.  She colored or we worked on her letters and reading.  

Auntie Jen came today to take us back to the apartment as Peter and Phia are in Anacortes tonight.  She brought with her Princess tattoos for decorating her new look.  We put four all over her head.  She loved it, but shortly after became sick and threw up.

Getting her ready for bed tonight I said "come on Madelyn, let's go brush your teeth and brush your hair" wondering if she'd get the joke.  She thought it was pretty funny.  "Mama you're crazy."


I thought the no hair thing would bother me a lot more than it has... so far.  Let's see how I feel in a couple days.  Of course it's not the hair that's the issue, but the reason why it's gone.  For now though, Madelyn and I are both enjoying her new look.  She looks beautiful.  I love kissing that bald head.  It reminds me how thankful I am that I have that head to kiss.