July 19

On Wednesday July 18th we left Charles de Galle airport in Paris, France at 11am and headed home from a month in Europe.  We arrived in Seattle at 1pm on the same day and went to my sisters house.  I promptly fell asleep on her couch.


The girls both woke up at 1:30am.  Ahhhh, jet lag.


Seven hours later when our appointments started at 9am at Seattle Children's we were all startin' to drag.  


Madelyn's counts were low.  Still within the range that they want (ANC 500-1,500), but low for her.


Hem 34.8    WBC 1.8   Plat 216   ANC 747


Her liver toxicity was also quite elevated ALT 285, but within normal range for a little noodle with Leukemia.


We will anxiously await her counts at Island Hospital in two weeks and be a little more diligent about sickness.


So now we begin MJs Hard Week doubled with the difficulty of jet lag.  It shall be interesting...

Trip To Europe update

Make sure and check out MJ and Phia's travels in Europe.  So proud of my good little travelers...


http://milk-to-go.blogspot.com

July 17

Phew... all is well.  She had about two days of not feeling well, but rebounded quickly and no fevers!  Yay!  We are at Chales de Galle in Paris this evening and heading home tomorrow.  MJ has her Seattle Children's appointments on July 19 and then we'll finally be home.  Next week will be... challenging... jet lag + Madelyn's Hard Week.


More soon...


Lisa

July 12

Woke up to a bit of a worry.  Madelyn came into our room on our little boat in the canals of Burgundy and started to throw up.  She threw up twice and then went to sleep until about 9:30am.  She slowly started her day, but was not MJ again until 1pm.  We kept the day easy though with no excursions.  We quietly motored to our final destination Montbard, France.  


Peter and I are not quite sure what is going on, but have concluded she may be overdoing it a bit plus the chemo.  


Let's hope that is the case.  We have the pediatric oncology addresses in Dijon and Paris programmed into our phones just in case... will keep ya all posted...

July 3 / Zurich Kinderspital

We are with the Swiss Kuhnlein’s this week!  Always so much fun for MJ and Phia.   On Friday, Madelyn and I went to the Zürich Kinderspital for a CBC and examination with a Oncologist:

WBC 2.4    Plat 251    ANC 1,360   ALT 126

They are so wonderful at the Kinderspital;  we feel very comfortable there.

She had a few days of not feeling well when we first arrived in Europe, but I believe it was just a combination of the previous weeks chemo in combination with jet lag.  Her energy is good now and we are all enjoying ourselves in Switzerland.  She loves her cousins here.  We will leave for France the day after tomorrow and have a family vacation in Burgundy and the Loire Valley.

Waiting to be called back for accessing.

Who is this girl??  She looks so grown up in this photo!!!  Oh my goodness...

While waiting for Madelyn's counts to come back from the lab we went to the cafeteria for lunch.  Peter was in pie heaven.  They had a pie buffet with 12 different pies.  We would never see this at the cafeteria at home.