Madelyn had a so-so day, but vomit free and she ate well. The Dexamethazone (steroids) are making her quite moody and the Vincristine is making her legs weaker. She fell down the stairs today because of lack of strength and it was scary feeling for her. She woke up at her 10:30pm and 4:30am for her medications just fine. She got out of bed at 6:30am , but went back to bed from 8:30am - 10:30am . She took another nap from 2:00pm - 3:30pm . She went to bed at 6:00pm . She is beginning to ferociously draw again. Waking up this morning and beginning to draw straight away. She drew little books all day long.
The steroids are making the hunger extreme again... not quite like Induction, but still significant. With Madelyn, amusingly enough, it is all about vegetables. Artichokes, corn, asparagus, peas, green beans, salads... we send her to bed with a big bowl of corn. She ate an entire artichoke all most completely by herself. It's great - I know! But so UN-5 year old like. She has a Dora and Diego cook book. Only MJ would pick this to make:
MJ's salad
Phia's salad
What amazing children and amazing parents! If they only knew how good their salads were for them! We applaud you ALL!!!
ReplyDeleteCary and Kathy Basnar
Awesome! I love this! Too cute!
ReplyDeleteMoira had to take prednisone for 12 days about 2 months ago. Cameron said it was like having an 18 month old with the emotional stability of a 13 year old girl and the appetite of a 15 year old boy. Moira learned the words cheese and juice for the occasion and would not be denied. You have my sympathies with this all.
Lisa and Peter - I should note that my above comment was in no way meant to be an "I know what you're going thru" type comment - because I freely admit I have no idea what you're going through. It was only an "I identify with how quirky small children on steroids can get" comment.
ReplyDeleteWe always keep MJ and you all in our prayers.