Another good day for Madelyn. She was discharged from Children's today!! We were actually to the apartment by lunch. When she climbed in the car she said "phew, sure feels good to get out of the hospital Mommy." I agreed. We took her to the new apartment and she seemed to like it. It is confusing for both her and Sophia. When we called the apartment "home" Sophia said "This not my home! I want my home." So we have decided to call Anacortes "home" and the Seattle place "our apartment." To help a little in their understanding.
Madelyn has been receiving so many packages... they make her soooo happy. Thank you, thank you Ashley, Erica,Harrington's, Rutz's, Miss Silja and Emily and Anya, Auntie Tisha, Auntie Jen, Auntie Dixie, Heather Mac and clan and San Juan Montessori. so nice to see her smile.
She was off to bed late this evening. We have to give her a steroid in the evening as part of her cancer fighting treatment. Keeps her from sleeping when she's tired, makes her antsy, moody and HUNGREY Never seen that girl eat so much...
Tomorrow should be a good day for her Alaina and her Daddy are coming to visit! But Friday will be a big day: chemotherapy in her Port (being acessed while she is awake), chemotherapy directly into the spinal cavity (via spinal tap) and another bone marrow biopsy. The biopsy is important: it will tell us if the current chemo therapy regiment is working well. If it is she will be labeled a Standard Risk patient. If not she will be High Risk and need more intense and longer treatment.
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