Day 1: after being admitted the night before. Here she is on the first day getting waiting for her first Bone Marrow Biopsy and Lumbar Puncture (spinal tap).
Here she is on Friday before her surgery to place her Port-A-Cath in her chest.
Watching the nurse remove her IV from her hand. Only a few hours after surgery her Port-A-Cath is ready to use for IV, to draw blood and to administer her chemotherapy.
Showing off her Port-O-Cath. Braver Girl...
Talking to Miss Holly, Miss Tina and Alaina at San Juan Montessori. Oh boy, did this maker her happy...
Watching a movie with sister...
Playing Noodle Face. Yes, we encouraged it :)
Making Princess tiara's with Auntie Jen and Taylor (her older brother Simon was room buddies with us. Simon, 5 years old, has been battling Leukemia since March). Auntie Tisha, in Tucson, sent the tiara making package.
The bikes at the Seattle Cancer Center unit. Phia taking a spin with Daddy. There was also a play room for the Cancer unit. The kids here are not allowed to the big playroom in the hospital. Their immune systems are not working as they should and are very susceptible to infection and sickness.
Dude, her hair is so fine and so straight. Every morning MAJOR bed head and tangles.
Hooray!!!!! Discharged from the hospital... leaving the cancer unit.
You collect a lot of stuff when you are in the hospital for a week. Most of this is gifts from friends and the hospital. Seattle Children's is an amazing place. We are so lucky to have this hospital here.
Seeing the apartment for the first time...
What a beautiful, brave, strong girl MJ is. Thanks for sharing. Love you all!!
ReplyDeleteThe photos are a very good way to share what you all are going through. Thank you so much for doing this. I agree that Madelyn is such a brave and strong girl, and I love her beautiful pictures. A big thank you to all the doctors and nurses who have been there to help get through this. What a BIG learning experience for all of us! Keep sending us that beautiful smile, Madelyn!
ReplyDeleteThanks for sharing... I'm so glad your keeping us all in the loop. We're definately thinking about you guys a lot!
ReplyDeleteIt's so great that you set up this blog. How lucky your girls are to have such wonderful parents. Madelyn is such a trooper- you all are. She is going to look back at all of those tender & sweet pictures someday & feel so empowered & loved. Thinking of you all!
ReplyDeleteHello Madelyn's family,
ReplyDeleteI am a board member of Fidalgo DanceWorks, and I was crushed to hear at the Winter Celebration yesterday of Madelyn's diagnosis. My daughter is Miss Erin, who assists in Ms. Sonya's class. In 1997, Erin's older sister, Serra, was diagnised with T-cell ALL at age 16 and a half. Serra's birthday is November 23, so to hear that was the day of Madelyn's diagnosis was especially poignant. I want you to know that Serra is alive and well, having just turned 30. She relapsed right at the end of her 2 year protocol and had a bone marrow transplant in 2000. If you'd ever like to talk or ask questions, please feel free to contact me at awoolsey99@aol.com
You are all in our hearts,
Annette
I heard about Madelyn through Janet King, a colleague of Harriet. We live all the way across the country in North Carolina and our daughter Mollie just finished treatment for pre-B ALL. I started a blog, www.allaboutmollie.blogspot.com to keep our friends and family informed of her progress. I am offering my support- if there is anything I can do to help, answer questions, navigate some of the charitable organizations, etc. please contact me at sarahdmertz at yahoo dot com.
ReplyDeleteI'll keep you and little Madelyn in my thoughts!
Sarah King