Pretty good numbers, but hard day overall. Madelyn was awake almost every hour last night. She was worried about today's "pokies", wanting to go home to Anacortes and hungry. She was NPO (no food) after 3:30am. Which, when on the steroids and four years old, is very, very hard. She didn't get sedation until 11:45am. Usually she eats every 2 hours. Plus Peter and I had a "not so fun" experience while Madelyn was going asleep. The nurse started pushing us out of the room before she was fully under. With no sleep, this was really upsetting for me. She had another bone marrow biopsy today and chemotherapy injected via spinal tap. Today was her last day of the Induction phase of therapy and she will begin her Consolidation phase on Jan 3rd (after her counts recover from todays chemo and if todays bone marrow biopsy still shows good results).
Tomorrow is Peter's birthday. His brother, Matt, with wife, Tanya, will be coming up from Portland and his parents down from Anacortes. He decided he wanted Sushi via take-out and donuts from Top Pot Donuts. If MJ feels ok I'm hoping she'll go with me to pick out the donuts.
Merry Christmas everyone. We all miss you sooooo much. xoxo
Walking into clinic with Daddy. MJ said this was her favorite picture.
Worried about getting accessed and verrrrrry hungry.
Getting her port accessed. Meaning they put a large needle in her port that has been put inside her chest. Like an IV, but inside her. For easier blood draws and giving of medicine. Even though she can't feel it, the process still gives her quite a bit of anxiety.
Waiting for sedation and watching Dora with Dad.
Just before falling asleep.
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