I have been
busy with lots of “me” stuff lately… Anacortes Arts Festival, a photography
workshop in Colorado… and I have been beating myself up for not getting
everything done that I need to or I want to.
Then I arrive back on the plane on Tuesday and get the bomb shell that
Madelyn’s counts have tanked. Her ANC is
288! It hasn’t been this low since she
was diagnosed and Delayed Intensification.
Everytime I start to get selfish there is something to remind me what my
real priorities are for the next few years.
So Madelyn is
in Lock Down. Poor honey. She understands why she can’t go out and she
is ok with it… but she still wants to
go to summer school, out to dinner, the playground. Be a normal kid.
We explain it
to her like this: Your white blood cells
are your soldiers. They fight against
infection and germs. You are supposed to
have like 2,500 soldiers, but you only have 288 which is not enough fighting
power. So if you get sick you won’t be
able to get better.
Madelyn’s
doctors have stopped all her chemo until her counts recover. It could be A) her bone marrow is just worn
out after two years of chemo every day.
Or B) it could be that her leukemia is back (worse case scenario).
This is a no
brainer multiple choice. A is our answer.
She goes back
in for a CBC on Monday morning. Then we
will see if the six day rest from chemo has helped. If she still hasn’t rebounded they will
continue the hold until she does… She is feeling great and has lots of energy. That is a good sign I think. She needs lots of good vibes, energy and
prayers that she does NOT GET SICK. No
fevers, no fevers, no fevers…
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