June 14

Madelyn had appointments yesterday, June 13.  Unfortunately, we were still a No Go to start Long Term Maintenance.  As disappointing as this was, there was still really good news…  She was almost there.  Her bone marrow IS recovering.  The virus is almost gone (rash is almost completely gone).  Her ANC was 726.  She needs to be at 750.  Her red blood cell and platelet counts were all normal! 

The doctors are very, very happy with how she is doing and so are we.  She hasn’t had this much energy for a year or more.  No anti-nausea meds, no pain pills, no meds at all for an entire month (other than her weekly antibiotics she’ll take for the next two years).  She is happy.  She is FABULOUS!!  And she has major hair growth.  Her last dose of chemotherapy was on May 13^th.  Amazing, what a month break can do.

So the plan is to try again this Thursday.  Madelyn and I will travel to Seattle Wednesday night and will be at the hospital at 8am Thursday morning.  The doctors feel confident that she will start Long Term Maintenance and that we should still travel to Switzerland.  I am really excited about this trip.  I’m excited to just focus on my family - having fun together - for a few weeks.  An almost cancer-world free trip… only a CBC needed while in Zurich. 

Look out Kühnlein’s… here come the Americans!