March 29

Madelyn had a good day.  Really good. 

She went to bed last night at 7pm and didn’t wake up until 7:15am.  We gave her an anti-nausea med (Zofran) at 7:30am with the battery of required meds.  But that was the last dose.  She actually had a pretty normal hunger level today, was tired when she was supposed to be tonight and was happy all day.  She didn’t even have a nap! 

The only thing that was particularly trying for Mom and Dad was the constant bickering between MJ and Phia.  I was this close to throwing my own temper tantrum before I realized I just hadn’t had enough caffeine.  After a double shot vanilla latte at Uptown Espresso (next to Glazers, the pro camera shop in Seattle), my 2 year old tendencies vanished and my inner 36 year old re-emerged…  The “I don’t care that my children are rolling around laughing, taking their shoes off and playing horsies in your store” calm came over me.

So yes.  We went to the camera shop first thing this morning.  Peter picked up a tricked out point-n-shoot camera for his trips to the mountains and I rented the 85mm f1.2 lens.  I am already deeply saddened that it must be returned by 10am tomorrow.  I have been drooling after this lens for about four years.  We then hit Walgrens and picked up some equally awesome pink and purple (of course!) cameras for the girls.  We went to the Quad on UW campus where the cherry blossoms are getting ready to be in full bloom.  We had a family photography expedition and snack picnic at my alma mater.  Hard to believe I graduated from UW 15 years ago…

So, fantastically, nothing to report other than a typical five year old day for Madelyn.  She did crafts, swung on the swings (Daddy can do double under dogs you know), played horsies and fought with sister.  Wonderfully typical.

Madelyn's med list for this week!  Crazy, eh?  Hard to keep it all organized...

Taking photos with their new cameras.

"Where does the picture go Daddy?" and a photog in the making.  Good stance MJ.

My funny girls.

My white hair matches the white blossoms.

Ok, so this was freakin funny.  This group of Japanese students were visiting and wanted to have their picture taken with Madelyn.  Only because they thought she was cute and probably a typical American kid.  Little did they know she is actually not typical, but has a rare childhood disease.  They took a group photo with Madelyn plus individual photos - each one with MJ.

My honey.  He's cute, isn't he!

I studied Anthropology in University.  The Anthro department is housed in the oldest building on campus.  There is a new building right next to it now (not there when I was at UW back in the olden days) that is ultra modern and just super cool.  Wonderful space, lines, light and interest.  Awesome dichotomy next to ol' Denny Hall.  Loved it.