I wanted to tell you all about a friend of my Mom's, Deborah Nelson. She is running in the Paris Marathon on April 10 in honor of Madelyn and in memory of my Grandmother who passed away from Leukemia in June. She and her teammates are members of The Leukemia & Lymphoma Society's Team In Training in Seattle. Madelyn and I hope to go visit the team soon. My Mom sent her a Tshirt to wear while running with Madelyn and Grandm'as picture on it.
http://pages.teamintraining.org/wa/paris11/dnelsonhah
There is also a Pediatric Cancer Walk happening at Magnuson Park this summer. We hope to participate in this as a family and have as many Madelyn lovers with us as possible. I will send details on this soon. Magnuson Park is right next to our apartment in Seattle so we may plan a little party afterwards in the Community Center. Will keep you all posted on that...
I also wanted to give you all an update on Jedi Simon. He has had an extremely rough two weeks. So rough, I won't go into the details. I cry every time I read his blog. I will go straight to the good news. He has finally en graphed!!!!!! This means the new cells have taken up residence in his body and are producing new healthy cells. His ANC was 450 yesterday. They have been in the hospital since the end of January and I bet the idea of possibly going home in a week or so seems almost surreal. (His Mom said the preliminary list of meds they would go home with were 28). All your warms thoughts, prayers, use of the Force and Engraphment Dancing have worked. Thank you.
So we are entering the month of March... I can't believe we are there already. We have four weeks left at home (with traveling to Seattle for treatment weekly). Come the week of March 28th we will be living in Seattle full time again until the first of June. We will be more organized this time around though. We have a wonderful new photographer, named Kimee, that will be working with us at the studio. She will help keep us organized so we can keep working.
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