My girls are really good at sitting. I decided to do our Children's run in one day yesterday. My family was all together over New Years and I was ready to have a quiet night at home on Monday. So the girls and I left for Seattle at 8:30am and Peter stayed home to work. The girls just talked and snacked and played and sang the whole ride down. We pulled over on a freeway on ramp around 9:30am to put MJ's EMLA cream on.
Our lab appointment was at 10:30am and our doctor's visit was scheduled to start at 11:30am. We got right in for our labs, but ended up sitting in that waiting room from 10:30am until 12:45pm. I brought snacks plus we raided the infusion rooms snack/drink area. Other than snacking and a little coloring, we read books the whole time. I am just amazed by Madelyn and Sophia. They very happily sat and read books for over 2 hours. Never complained once or got those "I'm bored wiggles" that most kids, understandably, get.
Madelyn's counts were good, but ANC and ALT are still running high.
Hem 38.8 Plat 206 WBC 3.1 ANC 1953
So the doctor increased Madelyn's weekly oral Methotrexate dosage.
The ALT is a liver function count. It is running high which means her liver toxicity is high (from chemo). We will get this checked again in two weeks at Island Hospital.
Madelyn was a little lacking in spunk for a few days this week and complaining of a belly ache. We are thinking that all the extra eating and treats may have caused her to be constipated and the lack of energy may be from too much excitement from all the cousins (and not enough sleep). I have three sisters and each of us has two kids. Which is super fun for all the cousins. Our New Years was busy, loud and sleepless.
We were finally ushered into an exam room at 12:45pm. I used all of my will power to not be irritated. It isn't their fault. It's the holidays fault. The doctor reviewed her counts and did the physical exam. Madelyn got the ok for her Vincristine infusion. (This chemo will also increase next month due to her continued growing). Next we waited for the nurse to come for her infusion, but luckily that didn't take too long.
The doctor's know us and our routine. When Tina walked into the room she said "how late are we for swimming lessons?" Luckily we were not. I had factored lunch in the schedule and our infusion room snack raid would probably be sufficient to get us through lessons.
Madelyn has no problem going to Children's when she knows a swimming lesson is at the end of the day. She just LOVES her lessons. I spoke with her teacher and now Sophia will have her own lesson too! Yesterday was our first day of this. Sophia was so excited to start her lessons and be just like big sis. So at 2pm Madelyn had a lesson and I splashed around with Phia and then at 2:30pm we switched.
Next we had to take a run to the pharmacy so we did not leave the hospital until 4:30pm! We stopped for a dinner to eat in the car for the girls and then we were off to sit in traffic. The girls inhaled their dinner and passed out before we reached Everett.
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